Friday, August 12, 2011

So what is RSD?

It really sucks we know that! But what exactly is RSD, CRPS, RND, whatever they wanna call it.
Reflex Sympathetic Dystrophy (RSD) also known as Complex Regional Pain Syndrome (CRPS), is a chronic pain, neurological syndrome.  RSD is a malfunction of the central nervous systems, which causes pain and additional symptoms.
This is not a new disease. RSD has been documented all the way back to the Civil War.  If not treated aggressively and correctly RSD spreads rapidly. 
Symptoms of RSD include: 
  • severe intense burning pain (feeling like you are on fire)
  • pathological changes in bone
  • excessive sweating 
  • tissue swelling
  • extreme sensitivity to touch
  • dramatic changes in the color and temperature of the skin over the affected limb or body part
  • skin sensitivity
But this isnt all it can cause so many more things to happen, and many things are effected by this awful disease! 
Currently there is NO CURE for RSD. There is treatment but everyone with the disease is different, so its hard to know what will help you, and if not treated quickly then the disease is very progressive, and very hard to treat. 
There is no test to prove you have RSD, you have to diagnose it by symptoms, and ruling out other possible conditions. Although there is no test for some people the RSD will show "hot spots" on a bone scan but not for everyone so this is not used to diagnose the disease.

I was in a ATV accident in 2009 which caused my RSD, and I have tried everything, and have tried things multiple times. I now have RSD full body, and have yet to find anything to even slightly help me, although I have yet to try Ketamine. As this is a last resort due to the risks, but I am looking into this treatment and considering taking the risk to have it done.

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