Friday, September 30, 2011

Horses!

Well I have not been riding lately due to all my medical problems! But Stephanie the owner of where I ride at, had texted me saying just to come up there sometime and visit with her and the horses. So today my dad was off of work so I decided to go up there. I had a great time, I loved seeing her and the horses. I brought some apples with me and fed the horses, and petted and just visited them. We also have a new addition to out family there, he is a mini horse and his name is CJ (Cisco Jr.) Because he looks like a mini version of Cisco one of our other horses! He is a birthday present for her daughter who is turning 1, Kimberly!
It made me feel so much better to be with the horses, they are the only things that make me happy! It made me feel so much better, and happy actually! It also made me really really want a horse of my own even more than I already did!
Here is a picture of CJ the new mini!


This is Koda, she kept trying to lick me and rub her head on me, she must of known I had apples!


They were grooming each other and I thought it was really cute so I had to get a picture!

Song Of The Day!

The song for today is going to be Brooks & Dunn- Cowgirls Dont Cry
This is one of my favorite songs!

Thursday, September 29, 2011

Another Bad Day! Uhh!

When will this end! I am beginning to wonder if this will ever end! Will I ever get any amount of relief?
I can not take it much longer, right now my leg is in so much pain I want to cut it off. I dont even want to move a inch it hurts too bad! How do they expect you to go on like this?
I need some serious help pretty soon, I am loosing it! I am not sure what to do any more.
I cant even really type much my hands are so weak and I keep getting twitches when I type. Which sucks because right now in school I have to take a typing class which really sucks because I keep messing up and have to type all slow and have to keep doing it over again! Uhhh!
I am so far behind in school I really think its pointless I am even trying, I am probably going to have to repeat this year anyway.

Well this is extremely short but I can not right anymore, I am in too much pain and too exhausted! 

Song Of The Day!

The song of the day is Deer Tick- Piece By Piece And Frame By Frame
This guy Erik introduced me to them and I fell in love, this is my favorite song by them!

Wednesday, September 28, 2011

Song Of The Day!

The song I chose for today is Everything by Lifehouse
I love this song, it really touches me deep down, I listen to it all the time!

Tuesday, September 27, 2011

Song Of The Day!

The song for today is Bob Dylan- Like A Rolling Stone
Well Bob Dylan is amazing and I love all of his songs. My brother sounds a lot like Bob Dylan which is weird since his voice is so unique but many people tell my brother that, and when he left town and I had not heard from him in months, and didnt even know if he was alive, I would listen to Bob Dylan non stop, and Like A Rolling Stone was my favorite song to listen too. It is also one of my brothers favorites! I hope you guys agree its a great song.

Monday, September 26, 2011

Song Of The Day!

The song of the day is Mark Wills- Dont Laugh At Me
This song never gets old no matter how many times I listen to it! It is a amazing song, and very true and meaningful!

Sunday, September 25, 2011

Im Against Abortain.

Hi, Mommy.

I'm your baby. You don't know me yet, I'm only a few weeks old. You're going to find out about me soon, though, I promise. Let me tell you some things about me. My name is John, and I've got beautiful brown eyes and black hair. Well, I don't have it yet, but I will when I'm born. I'm going to be your only child, and you'll call me your one and only. I'm going to grow up without a daddy mostly, but we have each other. We'll help each other, and love each other. I want to be a doctor when I grow up.

You found out about me today, Mommy! You were so excited, you couldn't wait to tell everyone. All you could do all day was smile, and life was perfect. You have a beautiful smile, Mommy. It will be the first face I will see in my life, and it will be the best thing I see in my life. I know it already. ... Today was the day you told Daddy. You were so excited to tell him about me! ...He wasn't happy, Mommy. He kind of got angry. I don't think that you noticed, but he did. He started to talk about something called wedlock, and money, and bills, and stuff I don't think I understand yet. You were still happy, though, so it was okay. Then he did something scary, Mommy. He hit you. I could feel you fall backward, and your hands flying up to protect me. I was okay... but I was very sad for you. You were crying then, Mommy. That's a sound I don't like. It doesn't make me feel good. It made me cry, too. He said sorry after, and he hugged you again. You forgave him, Mommy, but I'm not sure if I do. It wasn't right. You say he loves you... why would he hurt you? I don't like it, Mommy.
... ... ... ... ... ... ... ... ...
Finally, you can see me! Your stomach is a little bit bigger, and you're so proud of me! You went out with your mommy to buy new clothes, and you were so so so happy. You sing to me, too. You have the most beautiful voice in the whole wide world. When you sing is when I'm happiest. And you talk to me, and I feel safe. So safe. You just wait and see, Mommy. When I am born I will be perfect just for you. I will make you proud, and I will love you with all of my heart.

I can move my hands and feet now, Mommy. I do it because you put your hands on your belly to feel me, and I giggle. You giggle, too. I love you, Mommy.

Daddy came to see you today, Mommy. I got really scared. He was acting funny and he wasn't talking right. He said he didn't want you. I don't know why, but that's what he said. And he hit you again. I got angry, Mommy. When I grow up I promise I won't let you get hurt! I promise to protect you. Daddy is bad. I don't care if you think that he is a good person, I think he's bad. But he hit you, and he said he didn't want us. He doesn't like me. Why doesn't he like me, Mommy?

You didn't talk to me tonight, Mommy. Is everything okay?

It's been three days since you saw Daddy. You haven't talked to me or touched me or anything since that. Don't you still love me, Mommy? I still love you. I think you feel sad. The only time I feel you is when you sleep. You sleep funny, kind of curled up on your side. And you hug me with your arms, and I feel safe and warm again. Why don't you do that when you're awake, any more?

I'm 21 weeks old today, Mommy. Aren't you proud of me? We're going somewhere today, and it's somewhere new. I'm excited. It looks like a hospital, too. I want to be a doctor when I grow up, Mommy. Did I tell you that? I hope you're as excited as I am. I can't wait.

...Mommy, I'm getting scared. Your heart is still beating, but I don't know what you are thinking. The doctor is talking to you. I think something's going to happen soon. I'm really, really, really scared, Mommy. Please tell me you love me. Then I will feel safe again. I love you!

Mommy, what are they doing to me!? It hurts! Please make them stop! It feels bad! Please, Mommy, please please help me! Make them stop!

Don't worry Mommy, I'm safe. I'm in heaven with the angels now. They told me what you did, and they said it's called an abortion.

Why, Mommy? Why did you do it? Don't you love me any more? Why did you get rid of me? I'm really, really, really sorry if I did something wrong, Mommy. I love you, Mommy! I love you with all of my heart. Why don't you love me? What did I do to deserve what they did to me? I want to live, Mommy! Please! It really, really hurts to see you not care about me, and not talk to me. Didn't I love you enough? Please say you'll keep me, Mommy! I want to live smile and watch the clouds and see your face and grow up and be a doctor. I don't want to be here, I want you to love me again! I'm really really really sorry if I did something wrong. I love you!

I love you, Mommy.

Every abortion is just…

One more heart that was stopped.

Two more eyes that will never see.

Two more hands that will never touch.

Two more legs that will never run.

One more mouth that will never speak.

If you’re against abortion, repost. </3

Song Of The Day!

Rascal Flatts- I Wont Let Go
This song my mom said is her song to me. I love this song so I hope you do too!

Saturday, September 24, 2011

Song Of The Day!

The song of the day is Linkin Park- Iridescent
I first heard this song when my brother's best friend Graham, who died in Afghanistan, his mom posted this on facebook saying this was Grahams favorite band and when she heard this song she thought of him and cried, I fell in love with this song right then. So I hope you like it!

Friday, September 23, 2011

Song I Wrote!

So I wrote a song last night, I do not write songs so its not great haha. It is made by a beginner that does not sing or anything! 
Its called Hold Me Now 

Someone hold me now
Someone get me outta here
I cant take this sorrow
Im drowning in this sea of uncertainty
Help me make it to tomorrow
Ohh hold me, hold me now
Pull me away from this pain
Im drowning in this sea of uncertainty
Im left crying in the rain
Trying to Escape
I cant hold on much longer
Im getting close to falling in too deep
Im stronger, but its not enough
So hold me, hold me now.

Depression Cause And Effect

I wrote a paper for English on depression, we had to write a cause and effect essay and I figured this would be the best topic anyways here it is!
Feeling sad, or down from time to time is a normal part of life. Depression is more than just feeling sad, it is prolonged sadness that doesn't go away. Depression makes it tough to function and enjoy life. Hobbies, and friends don't interest you anymore. Some may describe depression as living in a black hole. Not everyone with depression feels sad though, some just feel empty, or angry. Depression varies between people but there are some common signs and symptoms to look out for. Some of the symptoms of depression include: Feeling hopeless, loss of interest, anger, sadness, concentration problems, and sleep changes. These are just a few symptoms of depression, there are many more signs and symptoms that may indicate you are suffering from clinical depression.
It is estimated that 17.5 million Americans have some form of depression. 9.2 million have major or clinical depression. By the year 2020, the World Health Organization estimates that depression will be the number two cause of 'lost years of healthy life." In 1996 suicide was the ninth leading cause of death in the United States.
The causes of depression are not well understood, but are said to be multi-factorial. Studies show that in some cases depression is inherited. Although inheritance is an important factor in depression, it does not account for all cases. Illness is another cause of depression, the stress caused by having a chronic illness can cause major depression. In addition to that some illnesses, such as Addison's disease, can cause depression symptoms. Depression can be caused by a loss of a loved one. The extreme stress caused by a loss, is said to be a cause of major depression. One of the most common causes of depression today is bullying. Many kids and teens are bullied everyday, because of the way they dress, there race, there size, and many other reason.
Nearly 22 percent of the population suffers from depression. 15 percent of depressed people will commit suicide. Between 15 and 25 children every year commit suicide because they are being bullied. Depression can effect a person in many ways, it effects a persons sleeping, and eating patterns. It effects the way they live there life day to day. Depression does not only effect a person emotionally, it can effect a person physically too. It can cause headaches, fatigue, and physical pain through out a persons body. Depression does not only effect the individual with the condition, it can effect the people around them. Depression can lead to anger, self harm, suicide, and much more, and all this can effect the people around them.
There are many ways to treat depression. Medications and psychological counseling help most people suffering from depression. In some cases your regular doctor can prescribe medications to help, but in most cases you need to see a psychiatrist. Many people with benifit seeing a psychologist. There are many different types of depression medications. SSRIs, such as Zoloft are used often, SNRIs are another commonly used drug, such as Cymbalta. Other types of medications include: NDRIs, Atypical antidepressants, Tricyclic antidepressants,and MAOIs. Other froms of medications that are sometimes used may include stimulants, mood-stabilizing medications, anti-anxiety medications or antipsychotic medication. When taking any antidepressent you have a chance of increased suicidal thoughts. If you ever have these thoughts it is very impartant to let a adult know, or go to the local emergency room. Another way to treat depression is by Electroconvulsive therapy. In ECT, electrical currents are passed through the brain. This procedure is thought to affect levels of neurotransmitters in your brain. Some people are leery about ECT and its side effects, but it typically offers immediate relief of even severe depression when other treatments don't work. Other treatments for depression include: Vagus nerve stimulation, Transcranial magnetic stimulation, and Lifestyle changes. In some cases the depression is so severe that a hospital stay is needed. hospitalization may be necessary if you aren't able to care for yourself properly or when you're in immediate danger of harming yourself or someone else. Getting psychiatric treatment at a hospital can help keep you calm and safe until you improve. Partial hospitalization or day treatment programs also are helpful for some people. These programs provide the support and counseling you need while you get symptoms under control.

Cant Really Move! :(

My back is in horrid pain today with every bit of movement, I really do not know what to do "I am down to one last breath." I can not even explain how bad things are getting it really is to the point where I need to get help like now! Also today my mom called Mayo Clinic in Rochester Minnesota, and to see the doctor she wants me to see it is a 15 month waiting list! That is insane but they said to send in all my records and a letter about everything and than they will see when they can see me.
I will not wait that long to get help but even if its that long its best to get on the list, because after the accident people said get on this list to see this doctor his wait is 3 years! And my mom said no way we will not be dealing with this that long, well I guess we should have got on that list?
I am looking for a back brace right now, as my back problems are the worst and my back feels very unstable but I cant really find anything other than a TLSO brace!


That right there is a official pain scale with the higher the number the worse the pain, RSD/CRPS is the highest on the list, which I believed scored a 48.3!

Song Of The Day!

The song of the day is, Creed- One Last Breath
I love creed and this song and right now this song really fits me!

Thursday, September 22, 2011

Really Does Not One Person Understand? Need To Vent!

Seriously I have yet to meat one person on the face of this Earth that does not have RSD/CRPS, that understands even the slightest bit, or even tries to understand. It is really getting to me lately, I can not take it anymore, I honestly feel so alone because no one gets it.
You would think at least my own parents might understand a little since you know they only lived with me my whole life so they saw me before the accident and after and how I have changed completely! But no they dont!
Like my sister hits and kicks me all the time, and to be honest it takes all I have to keep myself from punching her. I hate that they dont get a handle on her doing this, or they say "It takes two to tango" Umm well then tell me what the hell I did? Because as far as I know all I did was come down here and lay on the couch, and she hits me saying she was going to lay there! Now I know this is normal for all siblings but this is a different situation considering every time she hits me I have to suffer from the worst pain imaginable. I cant help but think how much better things would be for me if there wasnt a brat following me around all day hitting and kicking me.
And then I have to hear my mom nagging about my school and how I am so behind, blah blah blah. Yes I know I am behind you do not have to keep telling me and making me feel worse about it and making me stress out more about it. I am seriously thinking about just dropping out, I cant deal with it anymore, I hate school. Every morning I wake up dreading the day. I want a future for myself, so I really didnt want to drop out, but at this point I am going to fail anyway so why waste all of my time? Im over 20 lessons behind, not counting everything I didnt get to today! And I am already failing.
One of my friends I think kind of understands, maybe because her mom actually deals with chronic pain. But she still doesnt really get it but at least she kinda does. My other friend though does not get it no matter how hard I try and explain, I send him videos, info from the internet, and talk to him but still no luck! His mom doesnt help the situation either, she keeps saying "You should really go to Johnson so you could go to homecoming and prom with them" Well thanks for pointing out that I get to miss out on that, but sorry I wish I could go there to and get to go to homecoming and prom. Trust me I hate that I am missing the whole entire high school experience, I would love to be able to go to homecoming and prom, but no instead when my kids asked me about it, I get to say I couldnt go so I have no idea what it is like!
My parents think I would never end up like my brother, and I am the good one. Well you know what I dont know how much longer I can keep myself from taking the same path my brother did. I have come very close to smoking pot, the only thing holding me back, is I want a future, and I am afraid that I will love it because it takes me away from this awful world. I have talked to my therapist about it, and she asks all the time "Have you tried it, I know its not legal here, I am just wondering if it may help" I tell her I am afraid it will help so I have not tried it, I dont tell her how close I get to trying it. Same with alcohol, which of course I have tried, but I have never gotten drunk like my friends, which I am afraid will help me too, because I have a friend who a lot of crap is going on in her life and she goes to alcohol and it helps here? She also did self harm for a little while, which she said really helped to, and that I hate to say I have come very close to, and I am not gonna lie when me and my friends have played the Ice and Salt Challenge, I love doing it, and I always win. Why? Because at least I have control over that pain, I could stop it if I wanted and when I wanted. For a long time I also used to snap rubber bands on my arm which I still do sometimes, I also would dig my nails into my skin, or pinch myself for the same control. In all honesty this scares me, what if I do end up taking the same path as my brother? What if all this leads to more?

Update!

So yesterday I went to my psychologist, and I did mention me feeling depressed, and helpless I guess at times. We talked about how I dont complain because its kinda like no one does anything anyway so why should I? But she also said its good to let it out, but I really just physically can not complain! It drives me crazy because of course I want people to know how I feel and all, but I just can not bring myself to complain about it! 
Like today for insentience, I feel like crap, my legs feel weaker, almost dead like I cant even lift the weight of my own legs! My back is hurting a lot, and I often get this feeling like my neck cant hold my head up and today I have been feeling that. I also have a lot of pressure in my spine, which I have only recently been getting. Tremors have been a little bit worse, a lot of times at night, and when typing of course I get them. 
I have definitely been getting weaker, the other day I could not get the dumb water bottle open I kept trying and it would not budge, so I handed it to my friend and he opened it with no effort at all, and his reply was "Could you seriously not open that?" And yes I could really not get it! I have also been dropping things more often, like I dropped my laptop the other day because I lost my balance, and I drop my phone probably 50 times a day! 
Well I just wanted to give a update and kinda just vent I guess.

Song Of The Day!

Sorry I know I forgot yesterday's song of the day! I completely forgot until today so here is todays.
Mark Schultz- He Will Carry Me

Tuesday, September 20, 2011

Doctors Appointment Tomorrow!

I have a appointment with my psychologist tomorrow. I think I might finally tell her how I truly feel, and everything, but Im not sure I have been saying I am going to for a while, and I never have the right moment to squeeze it in. Although I would think she kinda already knows how I am actually feeling. I mean its normal for me to be depressed, it actually seems weird I wouldnt be. But I dont think she knows how bad it gets. 
Its been trying to get its way out, but I just haven't found the right moment to say it all, or I will get the moment, and I chicken out at last moment!
I have dropped a small hint, she gave me a list of feelings and asked me which ones I feel, and of course I didnt say the words that fit me perfectly, like depressed, sad, hopeless, and all that, but I did said empty, which is a way some people say depressed? And than I said well I feel nothing, Im not angry, sad, or happy, I feel nothing. Why I cant just say it I will never know! 
Maybe its because growing up my mom would roll her eyes when I complained about things, or said _____ really hurts, or whatever. Like when I hurt my knee she kept rolling her eyes when I said it hurt, and it took months before she took me to the doctor and ohh guess what I have had knee problems since, and I honestly believe because it wasnt treated! Now my knee cap shows it isnt aligned properly. And I was always told to keep my feelings inside, so now I guess I physically can not express my feelings. 
There are so many times I hold in my tears, sometimes I cry when I take a shower or at night because those are the only times I feel I actually can! I wish I could express my feelings, because than maybe people would realize how bad I actually feel, I wish I could complain and cry about the horrid pain I am in but I cant! And it kills me but I really just can not express how I feel.

Song Of The Day!

The song for today is Cloverton- Hope Inside
This is a really amazing song, that I have fallen in love with!

Monday, September 19, 2011

Ehlers Danlos Syndrome.

I have not really mention this disease much, but I received the diagnosis of EDS a little over a year after being diagnosed with RSD.
Ehlers-Danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.
A variety of gene mutations (changes) cause problems with collagen, the material that provides strength and structure to skin, bone, blood vessels, and internal organs.
The abnormal collagen leads to the symptoms associated with EDS. In some forms of the condition this can include rupture of internal organs or abnormal heart valves.
Symptoms of EDS include:
  • Double-jointedness
  • Easily damaged, bruised, and stretchy skin
  • Easy scarring and poor wound healing
  • Flat feet
  • Increased joint mobility, joints popping, early arthritis
  • Joint dislocation
  • Joint pain
  • Premature rupture of membranes during pregnancy
  • Very soft and velvety skin

    There is no specific cure for Ehlers-Danlos syndrome. Individual problems and symptoms are evaluated and cared for appropriately. Frequently, physical therapy or evaluation by a doctor specializing in rehabilitation medicine is needed.
    Possible complications of Ehlers-Danlos syndrome include:
  • Chronic joint pain
  • Early-onset arthritis
  • Failure of surgical wounds to close (or stitches tear out)
  • Premature rupture of membranes during pregnancy
  • Rupture of major vessels, including a ruptured aortic aneurysm (only in vascular EDS)
  • Rupture of a hollow organ such as the uterus or bowel (only in vascular EDS)
  • Rupture of the eyeball

    So now that I have covered what EDS is, now why did I bring this up? Other than to let people know about this disease to, I brought it up because, my mom had mentioned that maybe we should focus on trying to treat this disease because who knows what problems are related to which disease. So she said a doctor she talked to by email had suggested we find a hospital that has a pain program similar to those of RSD but not with the intensive PT, because that can make me worse, which makes since, so where do we go from here? Do we look for a hospital with a pain program for EDS, or do we continue to focus on RSD?
    I really believe most of my problems are related to RSD, not EDS, and actually reading more about EDS, I am not really even sure I feel confident about the diagnosis. Which that leads to another story, since the diagnosis some doctors feel this is not accurate, including the doctor I trust the most with my health, the doctor who diagnosed the RSD. So who is right? Do I even have EDS? I mean I match the hypermobility of course, I have frequent dislocations and subluxations but I dont bruise easily, my skin isnt soft and velvety, I dont scar easily, and my skin isnt the slightest bit stretchy and I cant do some of the weird flexible things people with EDS can do, although I can do some. So in all honesty I dont really think I even have Ehlers Danlos, maybe its just loose joints, like more doctors have said, than have said its EDS.
    So if it was up to me I would probably just be focusing on RSD, or the fact that maybe there is something they are missing? With my weird blood work and all my symptoms maybe there is something there missing?

Song Of The Day!

9-19-2011
The song of the day is Diamond Rio-In God We Still Trust
This is a amazing song that should touch every American, I in courage you to share this song and request it on your local country radio station, many stations will not play this song, and it needs to be heard!

Sunday, September 18, 2011

Song Of The Day!

I am going to start doing this thing called song of the day. Where everyday I will post a video to a song on YouTube.
So here is the first one, Dont Give Up- Shawn McDonald.

Saturday, September 17, 2011

10 Annoying Things They Do In The Hospital!!!

Okay well I decided to do a fun little blog today about the annoying things they do in the hospital!
1- When they wake you up at 4 in the morning to ask if you need to go to the bathroom, or if you have drank anything since the last time that was recorded!
2- They make you write down how much you drink and how much you pee, even if you not in there for anything that would need you to do that!
3- They come take your trash late at night when even when there is like one piece of trash in there!
4- They take your vitals every hour! Isnt that a little excessive (In most cases)
5- Once I told the on call nurse that the doctor told me to tell her to unplug my IV so I can go to PT and then they can plug it back in, and she wouldnt!
6- When they wont let you take a shower or go to the bathroom by yourself, or wait for you with the door cracked, when it is not needed!
7- Most annoying is when they dont believe you!
8- When they hold your cup and have a straw in it when giving medication! I hate this because I dont like taking medication with a straw in my water
9- When they check your height 3 times a day! I have not shrunk or grown since the last time you did it, and I am tired of getting up to make sure I havent!
10- When the dumb IV stand thing doesnt fit through the bathroom door easily! Like what kind of idiot did that, I have to pee and I cant get the dumb stand through the damn door! Err!

Friday, September 16, 2011

God Answered Prayers Today

I woke up this morning to the pain in my ribs and back worse, shooting pain with every breath. But you know what else I woke up to this morning? A prayer that so many prayed, was answered, it was raining in Texas. 
We needed this rain more than anything, and we had finally received it. 
For those who didnt know Texas has been breaking out in wild fires all over. Bastrop has been the worst, it has burned over 30000 acres, and over 500 homes were destroyed. This may be the biggest fire here but it definitely is not the only Canyon Lake, Stone Oak, Fair Oaks, and homes, and Property all over Texas have burned. Everyone has been praying for this rain, I new it would come, it always does. 
This is the second worst drought Texas has seen, the worst being in the 50's, and from pictures we were very close to reaching the worst drought in Texas. But like always when Texas reaches this horrible drought, a miracle happens and it will flood. It may not have flooded today, but take my word for it, we will get a down pour.

Thursday, September 15, 2011

RSD/CRPS Hospital Protocol

This is the RSD/CRPS hospital protocol, I got this from RSDS.org.
Here is the link if you want to print it!
http://www.rsds.org/pdfsall/hospital_protocol.pdf

Patient Tips
1. Bring a written copy of your medication regime. It
is important to verify whether your medication regime
can be taken care of solely through use of the hospital's
pharmacy. Some medications may not be part of the
hospital's formulary.
2. Avoid having ice applied to the RSD-affected limb
3. Instruct all hospital staff to always ask before touching
you!
4. Request that the surgery protocols be adjusted so
that the pre-op shave be done after anesthesia
(catheter is in place for epidural or whatever). It feels
like a lawnmower has been run over your legs when
they shave without anesthesia.
Patient Room
1. Whenever possible patient should be in a quiet part
of the hospital
2. In a semi-private room, patient should be in the second
bed to avoid inadvertent bumping
3. A Zone-Air bed should be used (adjust mattress pressure
to patient preference)
4. Heat and air conditioning should be well regulated
5. Standing orders should be issued for patients to have
warm blankets
6. Foot Cradle to hold bed linens off body area (will
diminish tactile stimuli)
7. Frequent linen changes may be necessary due to
hyperhidrosis (increased sweating).
8. Allow family members to bring in clean sheet and pillowcases
for patient. Hospital sheets are not soft and
can irritate the skin.
9. Place a sign above bed designating affected limb
 Procedures
1. Perform a phlebotomy on unaffected limb only
2. Use Pediatric needles (any trauma can cause the
spread of RSD to a new site)
3. Warm Alcohol or Betadine wipes with warm running
water on outside of package before opening package
(these wipes can be very cold to the patient)
4. If PICA site is available, see if blood can be obtained
from PIC instead of using vena puncture technique.
Blood Pressure and Pulse Rate
1. Use cuff on unaffected limb only
2. Use thigh cuff if both upper extremities are affected
Transport
1. Ask what kind of help the patient needs when transferring
to a stretcher or wheelchair (simply touching
arms or legs may cause hyperalgesia)
2. Use extreme care over bumps, such as elevator doorways
Feeding
1. Be careful not to touch patient extremities with bedside
table
Patient Identification
1. Place red bracelet on unaffected limb
2. Place red dot sticker on patient chart

Tuesday, September 13, 2011

20 Things Not To Say To Someone With Chronic Pain

Anyone who suffers from chronic pain knows that there are a lot of things we all hate hearing, and that hurt us when they are said, but for those that dont live with it they may not realize its hurtful. Here are some things not to say to someone in chronic pain.

1. You Don't Look Sick

2. Maybe If You Just Got Out More

3. You Can Learn To Live With It

4. You'll Just Have To Tuff It Out

5. It's All In Your Head

6. You're Just Having A Bad Day

7. This Will Pass

8. Just Get More Exercise

9. It Can't Be That Bad

10. It Must Be Neat Not To Have To Work/Go To School

11. Just Be More Positive

12. It Could Be Worse

13. There's People Worse Off Than You

14. At Least Its Not Cancer

15. I Completely Understand

16. Why Aren’t You Healed Yet

17. Look At The Bright Side.

18. So Many People Are Praying, I Know That You’ll Be Healed.

19. If You Just Believe You Will Be Healed

20. You Can Do Anything With Your Mind, You Can Heal Yourself.

Giving In And Giving Up.

Im not the type of person that, quits, or give up on a fight. So I never thought I would ever say this, but I am giving up this fight. I cant go on letting people believe I am okay. I cant keep forcing myself to do things with friends, or anyone actually. For the past two years I have forced myself to go out and see my friends, and try and live my life despite this awful disease, but that just leads people to think I am not as sick as I say I am. So im going to give up, Im gonna let the depression come in, and the disease take over, like it has been trying to for too long. 
I thought my parents had changed, I thought after all these years they finally believed that I truly was hurt and sick all those times they thought I wasnt. I guess I was wrong, they still dont believe. Today my mom said she thinks I just dont wanna go to school, because I can go with friends, but not go to school? I dont want to go with friends, I just didnt want to loose the few I have left, so I would force myself to go, no matter how miserable it was for me to do so.
Eventually people will probably see how I really feel, I cant hold back the pain, and tears much longer, they are going to have to come out. Maybe now people will start to take me seriously and believe me and realize I need help, and quick, I need my life back. I dont want to go back to going to bed at night wishing I wouldnt wake up. I dont want to let the depression sink in, but I know it will eventually, and I just hope I will be strong enough to handle it.