Bad day!

Today has pretty much sucked, I feel horrible, I cant breathe without shooting pains through my back and ribs that make me wanna scream. And my lower back, since the fall, has still been bothering me, but the past few days has been getting worse, and I have a ton of pressure in my lower spine, like someone is just pulling on my spine.
So because of all this, I decided I cant go to the barn today. Well I should of just went, because now my parents wont drop the fact that they didnt see why I couldnt go to the barn, but I went to the store tonight? Umm seriously? And they just keep saying, "What do you wanna quit? Im not paying for you to just not go!"
Do they realize how much that upsets me? If I could go I would, I would do anything in the world to just feel even the slightest bit better, really anything.
And then my mom was getting mad at me because I didnt do my spanish assignment today, and its not like I had to do it today, I decided it can wait till tomorrow. I was already really stressed, and was done with school, so I figured it could wait.
So now I am just laying in bed crying and listening to Hanson.
Now my dad comes into my room pissed because I wrote about how parents just make a bad day worse on facebook! He didnt even care I was crying and upset.

A paper a wrote for English class!

So I wrote a paper for English class titled, The Crash Of Summer 2009. The assignment was to write a autobiographical narrative. So here it is!

It was August 14th,2009, and I had a ATV race coming up on August 29th. We had planned a trip to my family's ranch down south for the weekend. I couldn't wait to get on my ATV and start riding, and get ready for the race coming up. When we finally arrived, I quickly unpacked everything, and I got my bike ready and went off to ride. It was a pretty nice day, it was hot but there was nice breeze. I started driving down the main road, a long, flat, dirt road, I was having some trouble with my bike but nothing major, just needed a new spark plug.
 I was having a great time just riding freely through the ranch, with the wind blowing in my face. It was about 5 minutes into my ride, and before I new it I had crashed. I was taken to the nearest hospital, which was an hour and a half away in Laredo, Texas. The ride there was horrible, we had to travel down dirt roads for a while, and the bumps were killing me. I arrived to the emergency room, and they took me in right away, and began taking X-rays.
Three days later I returned to San Antonio, and saw my Orthopedic doctor. He saw two breaks in my leg that the ER had not acknowledged. He had mentioned that he thought we had a bigger problem on our hands but he just changed subject, so I didn't think anything of it.
 Over a month goes by and things had not gotten any better, things had gotten worse. My doctor than decided a MRI was needed, I asked "Do you think there are some torn ligaments?" His reply was "That would be the least of my worries" I was confused what does that mean?  We finally had received the call saying the MRI was in and to come by his office. I was nervous, as I went in, thinking whats wrong. He said the MRI did come back with new injuries, so he said lets put on another hard cast and see how things go.
 I had done everything the doctor told me too, so why were things getting worse? My orthopedic then decided I needed to be taken out of school and placed on Hospital/Homebound, because I was missing so much. He than ordered a bone scan to be done immediately. We had it done and than went immediately back into the doctor to have the results reviewed. He came in shaking his head, and said the results were shocking. Not only was my whole entire leg covered in what they call "hot spots" but it was so incredibly bright that it was "like a candle lit in front of you." So what does this mean? I was still confused, and scared to hear what he was going to tell me. He explained that I had Reflex Sympathetic Dystrophy also known as Complex Regional Pain Syndrome. A rare neurological disorder.
So what is this? According to the National Institute of Neurological Disorders and Stroke (NINDS), RSD is "a chronic pain condition that is believed to be the result of dysfunction in the central or peripheral nervous systems." It can cause many different symptoms but the most common are, extreme pain, sensitivity to touch, swelling, and skin changes.
I began treatment right away, but nothing was helping, I was then sent to Seattle Children's Hospital, one of the only 3 hospitals in the US that are qualified to treat this disease. While I was there I under went a pain program for children with RSD. They were able to get me walking, and I was able to wear a shoe for the first time in 8 months. Although this did not take the pain away it still helped some. It did not take long though for the RSD to get worse again, and eventually spread all over my body. We than took immediate action and sent me to Dallas Children's Hospital, where they had a new program that was like Seattle. I was there for 6 weeks and got worse day by day. I started passing out, having trouble breathing, and getting sick, because of the pain. I was sent home worse than when I had arrived with no clue what to do next.
 I have tried hundreds of medications, nerve blocks, TENS unit, hydrotherapy, and of course intensive PT/OT, also known as torture. Nothing has even helped slightly. I now use a wheelchair to get around, because the pain is too bad, and I am too weak. There is still one thing I have yet to try, it is something saved as a last resort due to its risks. Its called Ketamine and they give it in high doses over the course of a week in the hospital, and it is said to help, because with this they are able to reset your nervous system.
You would think after all of this I would be really depressed, and I would hate life all together, but this has actually made me have a positive outlook on life. I have learned through this to take nothing for granted, and appreciate everything I have. I have also learned how supportive, loving, and caring my family and friends are, through this hard time. This disease has slowed me down a lot, which has made me see a lot of things I would have missed without it. I no longer see life as a whole, I see it as a ladder, or a staircase. Where every step is another part of my life, a different obstacle, I have to overcome.

RSD videos :)

Just some videos I like about RSD, the first 2 videos are ones that I made personally. All the other videos I do not own and are from youtube.

First Day Of School!

Well I had my first day of school, at connections academy online school. I have been on hospital/homebound for the last two years so this is kinda a big change for me. I was thinking online school would be something I could manage, unlike regular school. I was wrong! Its only my first day and I already am stressing out! It is not easy, and its really stressing me out, which causes my pain to go up. So just after one day of doing this I am exhausted and my pain level is up! I am still going to give it a shot though, as I dont really have another option. So we will see how this goes. 

I already had to drop a class! I had to drop Spanish II, because last year I was aloud to use a translator on my phone, and my homebound teacher helped me a ton. So I would have failed Spanish II, thye do it different online then in public school. So now I dont get credit for the whole year of Spanish I did. :( 

But Im going to take up sign language for my language, but it still sucks I lose my 1 year of language credit! 

I had 4 classes to do today, Chemistry, Literature, Texas World History, and Geometry, and it took me about 5 hours today to do all the work, and its only the first day! 

It was really hard on me, because I am used to the max of 2 hours, only 2 times a week! And sometimes it was less, so this is really taking a toll on me.

Some great songs that helped me through a lot!

Rascal Flatts- I Wont Let Go, this song my parents dedicated to me and my battle with RSD!

Casting Crowns- Praise You In This Storm

Kutless- What Faith Can Do

Hanson- Never Let Go

Evanescence- My Immortal

Matthew West- Strong Enough

Wideawake- Livestrong

I have more songs too, these are just a few that helped me out a lot! I hope they can help other people get through some tough times too.

You Dont Look Sick?

I hate when people say "But you dont look sick" 

Just because we dont look sick does not mean we are not. Sometimes I really just wish I looked as sick as I actually felt! 

Any one who lives with any type of invisible illness will understand what it feels like to be told they dont look sick, or there is no way there in that much pain. 

I cant even count how many doctors I have seen, especially at the ER, that when they ask what my pain level is, and my reply is a high number like 8, they just roll there eyes or say to themselves, "8 and smiling." 

Well if you lived like this for as long as I do, you learn to deal with it, and trust me no I'm not always smiling, I just try and put up a good front. If my orthopedic see's me with tears in my eyes he knows its serious.

It hurts me when people think that you have to look sick, to really be sick. You cant see a lot of things that are real, like god, hes real, but can you see him? No so same with illnesses just because you cant see there sick doesn't mean they are not!

Or I hate the stares I get when I stand up out of my wheelchair and get in the car. I just wanna yell, "Yes I have the use of my legs, but that does not mean I don't need the chair" Like do they think I use the chair because I like it? Umm no, I wouldn't use it if I didn't need it.

Here is a great video for invisible illness, enjoy! 

Some of my favorite quotes. And a surprise!

So today I decided to share some of my favorite quotes! 

"How does it feel, how does it feel to be without a home, like a complete unknown, like a rolling stone."-Bob Dylan 

"May God bless and keep you always,
May your wishes all come true,
May you always do for others
And let others do for you.
May you build a ladder to the stars
And climb on every rung,
May you stay forever young,"-Bob Dylan

  

Once you choose hope, anything's possible.  ~Christopher Reeve

"Beginnings are usually scary and endings are usually sad, but it's everything in between that makes it all worth living." 

God didn't promise days without pain, laughter without sorrow, or sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way. If God brings you to it, He will bring you through it. 

Just because you can't see it doesn't mean it isn't there. You can't see the future, yet you know it will come; you can't see the air, yet you continue to breathe. 

"I don't pray for God to take my problems away, I pray only for God to give me the strength to go through them." 

“When you come to the end of your rope...tie a knot and hang on.”  

Franklin D Roosevelt

  

“This is my wish for you: Comfort on difficult days, smiles when sadness intrudes, rainbows to follow the clouds, laughter to kiss your lips, sunsets to warm your heart, hugs when spirits sag, beauty for your eyes to see, friendships to brighten your being, faith so that you can believe, confidence for when you doubt, courage to know yourself, patience to accept the truth, Love to complete your life.” Ralph Waldo Emerson

Those are just a few quotes I like, I have so many more I will share later.

Now for the surprise, a video! 

Is PT as successful for treating RSD as they say?

Well I have heard so many times PT has a 95% success rate for treating kids with RSD, but is that really true, I wonder?
Why do I question this? Because I think I have heard of more than 5% that did not have success.

I went to Seattle Childrens and got a tiny bit better from them, but not much, but still that was better than nothing.
Well just recently, in May, I went to Dallas Childrens for there intensive PT program, and I was getting worse and worse, which was very disappointing, but I stuck it out. I finished the program, and felt worse then when I went in. They didnt want to acknowledge any of the problems that arouse while I was there, such as passing out, and many alarming symptoms, that ended up bringing up the possibility of seizures?
They considered me being a success with there program! They had me act all happy and like it changed my life and all in a video!
I could not believe this, I was not any better, and I was worse, and they were acting like I wasnt any worse and I was so much better.
I told my orthopedic, who diagnosed me, and he just shook his head, and kinda laughed. He couldnt believe it either.
And since I stopped continuing stuff at home after over 8 weeks of getting worse because of it, they just kinda washed there hands with us.
And my mom got some of my records, and no where in anything has it ever talked about any of the problems that arose while I was there, like the passing out.
Which didnt surprise me because at one time my mom called a nurse and asked her about it, and she said there was nothing documented saying any of that had happened. Although after I got transferred to Baylor my PT and OT did tell Baylor I was having a lot of dizziness, nausea, and all that during PT and OT.

I do think PT is needed for RSD, but by a lot of doctors it has been proven that there is a line that if crossed with PT will make RSD worse, and I think they passed that for me!
But is there really a 95% success rate? I dont think there is since I was considered a sucess!

Before And After RSD/CRPS

Before RSD I was really active and loved sports, I had played basket ball for 6 years, ridden ATV's since the age of 3. I was always outside. I loved to hunt, fish, play airsoft, go to the beach, bodyboard, hang out with friends, and just be a kid! I used to skateboard, ride bikes, play catch, or play neighborhood sports. My dream was to race ATV's and Dirt Bikes. I was just like any other kid, had no worries and just living my life and having fun. 

Than on August 14th, 2009 my life was changed forever, after a ATV accident before a race. 

Now my life after RSD, I rely on a wheelchair to get around, I spend most of my time in the doctors office, or in hospitals. 

I cant play sports, I cant race, I cant go to school, I cant be a normal 15 year old. 

I lay in bed most of the time, or Im in a wheelchair. 

My life is nothing like it used to be, it changed a lot, I went from a active kid, to someone in a wheelchair within a matter of minutes. Although it may seem like my life changed for the worse, I believe it changed for the better. Why do I say that? Because this is how god planned my life to be, and there has to be a very good reason for this. So despite this I still try to live my life the best I can.

2 years after the accident.

Today is August 14th, exactly 2 years ago I was in a ATV accident, that little did I know would change my life forever. 

It was a friday, and I had just arrived at my ranch and unloaded the truck. I had a race the next weekend so I was eager to ride. I quickly got my bike ready and went off to ride, I was having some problems with my bike but I figured it wasnt a big deal as long as I stayed close to the cabin, and wasnt out too long. Within I would say 5 minutes of being gone I just had this gut feeling I should go back. I didnt want to make a sharp turn around, since my bike was acting up. I figured I would just take the fence line around and cut through the barn. About 3 minutes later on the back fence line, I crashed. 

The nearest hospital is over an hour away, it was not a pleasant drive at all especially on a lot of bumpy dirt roads. 

Little did I know this crash would forever change my life. I immediatly started experiencing the symptoms of RSD, I would not allow anyone to touch me after the accident because of the pain. After I got back to where I live, 4 days after the crash, I went to see my orthopedic, where he found more broken bones then the hospital had found. He right away knew in the back of his mind I had RSD, but he didnt actually say it, he wanted to see how things went. 

I started school and things just kept getting worse, one day I couldnt even rest my foot on anything, even though I had a boot at the time but wasnt supposed to put weight. I went to the nurse to get some ice, when I took off the boot, my leg was even more bruised than before and on the side of my ankle it was so swollen there was a lump the size of a softball. She called my dad and told him I needed to see my doctor. I did and thats when he decided to do a MRI, I asked the doctor, do you think I tore some ligaments? His reply was I hope its just torn ligaments, but thats the least of my worries. 

I was confused I didnt know what he meant by that? The MRI was a emergency one so I had it done and got the results the same day. I went in to see my doctor, he found more injuries so he put a hard cast on and said lets see how this does. Again its getting worse and worse and I am having trouble staying in school. I go back and he says he now is sure I have RSD, Reflex Sympathetic Dystrophy, He ordered a bone scan to see if it showed anything, and he took me out of school and placed me on homebound/hospital bound. The bones scan was lit up everywhere, and he said in all his years he has never seen it so bright, it amazed him. It was official I had RSD. 

Within about a month or 2 I had my second nerve block, and thats when my RSD spread into my backs and ribs and after that I wasnt even able to move my legs. 

Now 2 years later after more treatment then you could ever imagine, trying everything, I have had not even a little success. I now have RSD full body, and use a wheelchair to get around.

Gives Me Hope. Inspiring Story.

111111111111111111111111111111111111111111111111111 

Why cant people just understand?

Im tired of people just not understanding! It makes me so upset sometimes, and I dont expect you to really understand unless you go through what I do, but you can at least be a little understanding of certain things, I mean is that a lot to ask? 

Like today my mom was going to the store and I asked if I could go, and she said yes, and I asked well can I bring my wheelchair? Her reply was, seriously why cant you just walk? You just went to the store with your dad and walked. Then she goes on and on yelling with my dad about it, because I walked with him but I wont with her! I said never mind I wont go, or ill just sit in the car because I dont wanna walk but I wanna get out of the house. And my dad goes theres nothing in that store you wanna look at? Ummm yeah there is I would love to go in there but I dont want to walk, because its really hard for me to walk and it causes a lot of extra pain and makes me feel worse. 

And then other times when I ask if I can bring my wheelchair she just rolls her eyes and grunts and say whatever I guess, if you have to! 

Does she not realize how much it upsets me? And its not like I want to be in a wheelchair, it took me a long time to accept it, for a long time I was unable to walk and was in a bed all day, everyday, because I did not want to go in public in a wheelchair. 

Now I have finally accepted it, and I dont care if people stare or if they look away when they see me coming, because at least I dont have to feel worse than I already do, and I can have a better life. 

My friends are a whole other story. They really do not understand, which I dont expect them to really understand at all because they dont know anything about the diseases I have or anything. But what really gets me is when they get mad, and try and convince me to do something I cant! And it also makes me depressed because I cant do things I wish I could.

Like for instance my best friends always try to get me to go swimming and argue with me all the time and I once gave in and said I will go but wont get in but, they made me get it and I didnt even have a swimsuit! (but no one really did)

I have tried to explain to them I cant swim because it makes my RSD worse, unless its a heated pool, than it wont make it worse but it still hurts me a lot, due to the pressure of water. 

I try to get them to explain I have showed them my Imagine RSD videos on youtube and everything and I have shown them articles and they still dont understand, or they just dont want to! 

The biggest one of all though that gets me, is when a doctor does not understand!

I dont know how many times I have been told by doctors I just need to learn to live with it and suck it up. I was even told by my ex-pediatrician, "Well I have aches and pains all the time, you just have to learn to live with it." 

Umm you have aches and pains, you dont have RSD, this is not just a simple ache, this feels like someone poured gasoline all over your body and lit a match, and its 24/7! And dont even get me started with doctors telling me Im faking it, when a doctor says anything like this I want nothing more but to punch them in the face! 

I do want to say though I have one person in my life, that doesnt have RSD, who actually understands, he is a amazing friend, even though I have never actually met him! His name is Neil, he is from the true life episode, I have a traumatic brain injury. I met him online and we started talking, and he always knows what to say and how to make me feel better. When I was in Dallas Childrens Hospital, doing there intensive therapy program for chronic pain, which by the way those doctors did not understand at all, and told me I just had to learn to live with it! Well you know what Neil told me, "Do I need to come down there and show them just a ounce of the pain you are feeling, and maybe they can understand maybe a little?" It made me smile and stopped the tears. :) 

He truly is a amazing friend, and it surprises me that he is the one who understands the most, even though I have never really met him, and never really told him much about the disease. If it wasnt for him I dont know what I would do! I think I would be really depressed!, love you Neil! :)

So what is RSD?

It really sucks we know that! But what exactly is RSD, CRPS, RND, whatever they wanna call it.

Reflex Sympathetic Dystrophy (RSD) also known as Complex Regional Pain Syndrome (CRPS), is a chronic pain, neurological syndrome.  RSD is a malfunction of the central nervous systems, which causes pain and additional symptoms.

This is not a new disease. RSD has been documented all the way back to the Civil War.  If not treated aggressively and correctly RSD spreads rapidly. 

Symptoms of RSD include: 

• severe intense burning pain (feeling like you are on fire)
• pathological changes in bone
• excessive sweating 
• tissue swelling
• extreme sensitivity to touch
• dramatic changes in the color and temperature of the skin over the affected limb or body part
• skin sensitivity

But this isnt all it can cause so many more things to happen, and many things are effected by this awful disease! 

Currently there is NO CURE for RSD. There is treatment but everyone with the disease is different, so its hard to know what will help you, and if not treated quickly then the disease is very progressive, and very hard to treat. 

There is no test to prove you have RSD, you have to diagnose it by symptoms, and ruling out other possible conditions. Although there is no test for some people the RSD will show "hot spots" on a bone scan but not for everyone so this is not used to diagnose the disease.

I was in a ATV accident in 2009 which caused my RSD, and I have tried everything, and have tried things multiple times. I now have RSD full body, and have yet to find anything to even slightly help me, although I have yet to try Ketamine. As this is a last resort due to the risks, but I am looking into this treatment and considering taking the risk to have it done.

Ahhhh! Bad Fall!

So I had a horse lesson today, and me and my trainer are in the tack room, when we get a call from Stephanie, the owner. She says we have 2 minutes to get tacked up and ready for graduation! Ahh what!? My trainer tells me to just get ready she will go tack up for me and I meet her out there in a hurry get out into the arena, and have no time to warm up. I just got quickly into things and didnt take a lap walking to get my balance, and at the second turn I lost my balance and slid off, we ride bareback so I slid off pretty quick. I hit my lower back really hard and I hit my head, but thank god Stephanie is very strict on safety so I had a helmet. There have been a few times I am so glad she is so strict on safety! So I hurt my back, hip, neck, head, and got whiplash! I got right back on like always, well after a fall my trainer always goes easy so you can get your balance back, and I was just not doing good! Stephanie said I was squeezing with my left leg, although my trainer said she didnt think I was but whatever. So thank god Stephanie had a meeting and had to leave, so I couldnt do graduation. Well she called at the end, and asked my trainer if I was okay for graduation and said to wait for her. By then Im in so much pain and just wanting to stop already. She finally got there and we did graduation and I passed even though she said she could tell I was off, and wasnt really myself.

This is really bad due to my RSD, and I have a feeling this is going to make things a whole lot worse and I have a long road ahead of me.

Top 10 Guilty Pleasures

A guilty pleasure is something you like, but you really shouldnt like. Everyone has them! So here are my top 10, In random order. 

1-I love the smell of gasoline 

2-I like Twilight 

3-Im not a mainstream music listener but I love Katy Perry! 

4-I am obsessed with watching Teen Mom 

5-The best TV show ever is Pretty Little Liars! 

6-If the kids show Rugrats is on I usually watch it haha 

7-I listen to Miley Cyrus 

8-I watch Glee! 

9-Ez-Cheese 

10-I love bracelets, I own thousands no joke! and im not a girly girl im a tomboy! 

Random Questionnaire Type Thing!

So I decided to do like a questionnaire type thing, so you guys can learn more about me! 

 

WERE YOU NAMED AFTER ANYONE?

 Yes, one of my moms bosses had a little girl named Kendall, and my mom fell in love with the name and said she was going to name her first daughter Kendall. My middle name Paige was picked by my brother, he came home from school one day, when he was in first grade and said he had the perfect name for the new baby, it was this girl in his class's name but we already had my first name so it became my middle name.

WHEN WAS THE LAST TIME YOU CRIED AND WHY?  

Last night, I was in a lot of pain and I had just had enough and was upset.

 YOU LIKE YOUR HANDWRITING? 

 No! My hand writing sucks, I prefer to type things.

 WHAT IS YOUR FAVORITE LUNCH MEAT? 

 Turkey or Chicken. I dont like Ham just in case you wanted to know. haha ;)

 DO YOU HAVE KIDS? 

Nope I want a little boy but Im 15 so I have time before I decide to have one!

 IF YOU WERE ANOTHER PERSON WOULD YOU BE FRIENDS WITH YOU?

Of course I would, at least I hope I would!

 DO YOU USE SARCASM ALOT?

Yes, and I believe I need a sarcasm font on here!

 DO YOU STILL HAVE YOUR TONSILS? 

Yes I sure do.

WOULD YOU BUNGEE JUMP?

Maybe, not right now I woudnt, but it does seem like something I might do.

WHAT IS YOUR FAVORITE CEREAL?

My favorite would be Rice Krispie Treat but they dont make that anymore they just make the regular, so I guess I will go with corn pops!

DO YOU UNTIE YOUR SHOES WHEN YOU TAKE THEM OFF?

 Sometimes but I wear cowboy boots a lot so no shoe laces

DO YOU THINK YOU ARE STRONG?

 I believe I am emotionally, mentally, and physically stong

WHAT IS YOUR FAVORITE ICE CREAM?

I like plain Vanilla, I know boring haha, but I also love coffee ice cream!

WHAT IS THE FIRST THING YOU NOTICE ABOUT PEOPLE ?

Usually there smile, eyes, or hair haha.

RED OR PINK?

 Red

WHAT IS THE LEAST FAVORITE  THING   About yourself ?

 Umm probably that I have trouble remembering things and focusing on things and it definitely gets in the way and drives me insane!

WHO DO YOU MISS THE MOST  ? 

My first dog and my brothers best friend that I had since before I was born and she died in 2007, the same year my brothers best friend was shot in Afghanistan it seems like thats when everything started to get bad.

    

WHAT COLOR PANTS AND SHOES ARE YOU WEARING?

 Im wearing blue basketball shorts and no shoes because Im in bed!

WHAT WAS THE LAST THING YOU ATE ?

Some mini oreos.

WHAT ARE YOU LISTENING TO RIGHT NOW?

 Hanson-Never Let Go

IF YOU WHERE A CRAYON, WHAT COLOR WOULD YOU BE?

Red

FAVORITE SMELLS?

 Umm I like the smell of Gasoline I know weird haha and also fresh cut grass!

WHO WAS THE LAST PERSON YOU TALKED TO ON THE PHONE?

 My best friend :)

FAVORITE SPORTS TO WATCH?

Motocross, and Rodeo!

HAIR COLOR? 

Brunette

EYE COLOR?

 Brown

DO YOU WEAR CONTACTS?

Yes well sometimes. I have not in a while but I should, Im blind as a bat!

FAVORITE FOOD?

Mexican, or Steak.

SCARY MOVIES OR HAPPY ENDINGS? 

Happy Endings 

LAST MOVIE YOU WATCHED?

 Umm lets see I think it was Second Chances

WHAT COLOR SHIRT ARE YOU WEARING? 

Blue, White, and Black

SUMMER OR WINTER?

Summer I am not a big fan of the cold. I mean thats why I love Texas haha!

HUGS OR KISSES?

Depends who its from But I guess I would say hugs

FAVORITE DESSERT? 

Hmm I guess ice cream or frozen yogurt

WHAT BOOK ARE YOU READING NOW? 

I am not a reader so Im not reading anything right now.

WHAT IS ON YOUR MOUSE PAD?

Its a Jack Links Beef Jerkey mouse pad from my dads work I believe but I dont know I use a laptop more!

WHAT DID YOU WATCH ON T.V. LAST NIGHT? 

I just listened to music mainly, Ohh wait I did watch Melissa and Joey ;)

FAVORITE SOUND?

I love the sound of the nice outdoor, or music!

ROLLING STONES OR BEATLES? 

Your making me choose! Ahh idk it depends but If I have to say I guess Beatles

WHAT IS THE FURTHEST YOU HAVE BEEN FROM HOME?

Umm Seattle but I was in a hospital /:

DO YOU HAVE A SPECIAL TALENT? 

 Horse riding, I guess is all I can think of.

WHERE WERE YOU BORN? 

San Antonio, Texas and have lived here my whole life.

Wheelchair and School!?

So I have been thinking a lot lately about starting to use my wheelchair again, and I have decided it is probably best I do start using it again.

Since Im probably going to be using my wheelchair a lot of different places, than I used to, I will probably need to get a better one. As mine is just your normal wheelchair bulky, heavy, and hard to maneuver. I think a Ultra Lightweight one would suit me a whole lot better. I will just have to figure out if my insurance would cover it, since they are not cheap. It definitely is a need though if I will be using it a lot, because my other on just does not cut it, it doesnt even make it over the smallest bumps, and its heavy and I cant push it by myself all the time!

So I hope I will be able to improve my quality of life by using a wheelchair, I think it will get me out more, as right now Im really just laying in bed all the time, and getting depressed about it!

Now lets see, well I had been trying to decide what I was going to do about school. I want to go to school, as I dont want to miss high school, but I really dont believe it is possible I tried it last year and I couldnt do it. And this year things are worse so I just dont see it working out!

So I decided Im going to connections academy online schooling. I think this is a much better option for me, and is my best choice.

I told my best friend last night, on what i decided about school, and to my surprise he was understanding about it. He said he figured I wasnt going to go anyway and he agreed with everything I said. That made my choice a whole lot easier!

Well thats really all I have to say now but I may post something else later.

New to blogging-First Blog

My name is Kendall, and I am a Sophomore. I have been reading a few blogs about one of the diseases I have, Reflex Sympathetic Dystrophy (RSD), and I decided why not give blogging a try. So I guess I will start by telling you a little about me!

I guess I will start of telling you what my blogs will be about. Im going to right a lot about my RSD, but Im also just going to blog about my everyday life and what happens, as a way to just vent to everyone.

So lets give this blogging thing my best shot!

   I woke up today at 11:30, for some reason I have been sleeping late a lot lately and thats not really like me, I have just been so tired, even during the day! I had been in a lot of pain the night before and like always could not fall asleep till about 3:00 am, and kept waking up. At one point last night I woke up and my whole right leg was numb. At first I thought I was just sleeping wrong and compressing a nerve, until earlier today I realized I wasnt feeling my phone vibrate on my right leg! Oh no! I really dont need something else to go wrong right now. Today I didnt do anything really but lay on the couch, and listen to music, which I do a lot because of my pain.

I have been thinking of starting to use my wheelchair again, because I think it might get me out more, and especially if Im going to try and go to school this year.

Its now 10:47 here in Texas and Im laying in bed, again in a lot of pain. I took my medication like always but for some reason it has not been kicking in for a long time! Thats why I dont get to sleep until 3! I probably should get going and try and get some sleep, next blog I promise will be better and more interesting!